Neurofibromatosis(NF)
encompasses a set of distinct genetic disorders (NF1, NF2, Schwannomatosis) which cause benign and malignant nervous system tumours, however, can also affect multi systems including musculoskeletal, endocrine and organs . Neurofibromatosis may cause complications such as disfigurement, bone deformities, increased risk of cancer, blindness, hearing loss and pain, just to name a few. NF is variable, progressive and unpredictable.
Symptoms range from mild to severe. Although 50% of children born with Neurofibromatosis have inherited the disorder from a parent, NF can also occur spontaneously with no family history.
encompasses a set of distinct genetic disorders (NF1, NF2, Schwannomatosis) which cause benign and malignant nervous system tumours, however, can also affect multi systems including musculoskeletal, endocrine and organs . Neurofibromatosis may cause complications such as disfigurement, bone deformities, increased risk of cancer, blindness, hearing loss and pain, just to name a few. NF is variable, progressive and unpredictable.
Symptoms range from mild to severe. Although 50% of children born with Neurofibromatosis have inherited the disorder from a parent, NF can also occur spontaneously with no family history.
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The Neurofibromatosis (NF) Society of Ontario (NF Ontario/NFON) is completely driven and organized by volunteers. Our Mission is to provide support, information and assistance to families challenged by NF, work closely with clinical and research professionals who specialize in the treatment of NF, help fund research and provide information about Neurofibromatosis to physicians and the public to familiarize them with the disorder for early recognition and diagnosis. Although not everyone is seriously affected by medical problems associated with NF, monitoring for the known complications which can occur is an important part of routine healthcare for individuals diagnosed with the disorder.
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SIGNS, SYMPTOMS AND COMPLICATIONS OF NEUROFIBROMATOSIS
CLICK ON IMAGE TO ENLARGE
"My Amazing Twin" with Adam and Neil Pearson A must watch documentary which aired on BBC UK...click the image to watch it.
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DISSEMINATING NEUROFIBROMATOSIS INFORMATION
Downtown Summer Block Party, Orillia 2017
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Taste of Lawrence, Toronto 2017
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HOW YOU CAN HELP
NEUROFIBROMATOSIS ONTARIO IS A REGISTERED NON PROFIT CHARITY COMPLETELY MANAGED BY VOLUNTEERS. WE MAINTAIN A TRANSPARENT FINANCIAL PROFILE AND ALL DONATIONS ARE DEEPLY APPRECIATED AND THOUGHTFULLY ADMINISTERED FOR MAXIMUM IMPACT AND BENEFIT FOR RESEARCH,
SUPPORT, NF EDUCATION AND INFORMATION AND TO IMPROVE THE QUALITY OF LIFE FOR FAMILIES AND INDIVIDUALS CHALLENGED BY NEUROFIBROMATOSIS. TO DONATE PLEASE CLICK THE CANADA HELPS BUTTON OR YOU CAN DONATE BY CHEQUE AT THE ADDRESS AT THE TOP OF OUR WEB PAGE.
SUPPORT, NF EDUCATION AND INFORMATION AND TO IMPROVE THE QUALITY OF LIFE FOR FAMILIES AND INDIVIDUALS CHALLENGED BY NEUROFIBROMATOSIS. TO DONATE PLEASE CLICK THE CANADA HELPS BUTTON OR YOU CAN DONATE BY CHEQUE AT THE ADDRESS AT THE TOP OF OUR WEB PAGE.
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SUBSCRIBE TO OUR EMAIL LIST ABOVE
FOR ONLY $10 PER YEAR YOU CAN BECOME A MEMBER OF NF ONTARIO.CLICK HERE TO BECOME A MEMBER
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NEUROFIBROMATOSIS SOCIETY OF ONTARIO
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WILLOWDALE ONTARIO M2K 2Y6
PHONE TOLL FREE 1-866-843-6376
REGISTRATION #11905 3775 RR0001
Thank You To Our Sponsors
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