ARE YOU SEEKING GENETIC AND NEUROFIBROMATOSIS CLINICS IN ONTARIO CANADA? CLICK HERE FOR INFORMATION AND REFERRAL FORMS
*Referrals can only be completed by your Family Doctor or qualified Physician.
Please Note :Current Wait is 11-12 Months for New Patients at the ADULT NF Clinic*

Neurofibromatosis(NF)
encompasses a set of distinct genetic disorders (NF1, NF2, Schwannomatosis) which can cause benign and malignant nervous system tumours, however, can also affect multi systems including musculoskeletal, endocrine, skin and organs. Neurofibromatosis may cause complications such as disfigurement, bone deformities, increased risk of cancer, blindness, hearing loss and pain, just to name a few. NF signs and symptoms can be variable, progressive and unpredictable.
Symptoms range from very mild with barely any sign of the disorder to more severe with complications. Although 50% of children born with Neurofibromatosis have inherited the disorder from a parent, NF can also occur spontaneously with no family history.

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The Neurofibromatosis (NF) Society of Ontario (NF Ontario/NFON) is completely driven and organized by volunteers. Our Mission is to provide support, information and assistance to families challenged by NF, work closely with clinical and research professionals who specialize in the treatment of NF, help seed and fund research and provide information about Neurofibromatosis to physicians and the public to familiarize them with the disorder for early recognition and diagnosis. Although not everyone is seriously affected by medical problems associated with NF, monitoring for the known complications which can occur is an important part of routine healthcare for individuals diagnosed with the disorder. Our Vision is universal awareness of the disorder, prevention after discovery of a cause, successful treatment for those affected, cure to end NF.

Motivation from Jann Arden

Hello Everyone,
It is with great disappointment and sadness that the NFON Board of Directors decided today to reschedule the Neurofibromatosis Conference to March 27th, 2021 and cancel this year’s March 28th event. We believe that due to the current national and international concerns over COVID 19 transmission, we should err on the side of caution and cancel the conference this year. We are deeply sorry if this has caused any inconvenience. It was a very difficult decision and we had hoped the risk of public viral transmission would remain low and we could continue with the conference however we are no longer confident that a community transmission is completely avoidable. The Neurofibromatosis Ontario Board of Directors want to do our part in mitigating risk of infection for the attendees and speakers by avoiding a large group gathering at this time. Thank you for understanding.
We hope to see you at next year’s conference.
Neurofibromatosis Ontario
Board of Directors

$10,000 SEED GRANT for NF1 Research Children's Health Research Institute London Ontario

Neurofibromatosis Ontario has awarded
$21,135
in Seed Grants to help Launch research in Neurofibromatosis Type 1 & 2
in 2018 & 2019

The Mayor of Canada's Capital OTTAWA Proclaims May as
NEUROFIBROMATOSIS AWARENESS Month

WITH DEEP GRATITUDE TO OUR NF FAMILY CAMP SPONSORS AND DONORS WITHOUT WHOSE GENEROSITY THIS CAMP WOULD NOT BE POSSIBLE

DISSEMINATING NEUROFIBROMATOSIS INFORMATION

 

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