ARE YOU SEEKING GENETIC AND NEUROFIBROMATOSIS CLINICS IN ONTARIO CANADA? CLICK HERE FOR INFORMATION AND REFERRAL FORMS
*Referrals can only be completed by your Family Doctor or qualified Physician*
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Neurofibromatosis(NF)
encompasses a set of distinct genetic disorders (NF1, NF2, Schwannomatosis) which can cause benign and malignant nervous system tumours, however, can also affect multi systems including musculoskeletal, endocrine, skin and organs. Neurofibromatosis may cause complications such as disfigurement, bone deformities, increased risk of cancer, blindness, hearing loss and pain, just to name a few. NF signs and symptoms can be variable, progressive and unpredictable.
Symptoms range from very mild with barely any sign of the disorder to more severe with complications. Although 50% of children born with Neurofibromatosis have inherited the disorder from a parent, NF can also occur spontaneously with no family history.
The Neurofibromatosis (NF) Society of Ontario (NF Ontario/NFON) is completely driven and organized by volunteers. Our Mission is to provide support, information and assistance to families challenged by NF, work closely with clinical and research professionals who specialize in the treatment of NF, help seed and fund research and provide information about Neurofibromatosis to physicians and the public to familiarize them with the disorder for early recognition and diagnosis. Although not everyone is seriously affected by medical problems associated with NF, monitoring for the known complications which can occur is an important part of routine healthcare for individuals diagnosed with the disorder. Our Vision is awareness of the disorder, prevention after discovery of a cause, successful treatment for those affected, cure to end NF.
Volunteers are unspoken heroes whose efforts are often unknown outside their local community. Join us in celebrating Birgit whose efforts on behalf of Neurofibromatosis Ontario are being recognized at this year’s Volunteer Toronto Legacy Awards.
Latest News
Lawson receives funding from Neurofibromatosis Ontario to support epigenetic research
EPIGENETICS MAY LEAD TO NEW TREATMENTS FOR NEUROFIBROMATOSIS

Click the logo to find out more about Lawson Health Research Institute and the Children's Health Research Institute
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Help us unite individuals and families affected by NF. We are fundraising to bring families from other Provinces in Canada to the 2018 NF Family Camp Weekend. Please consider a small Donation to help us reach this goal HERE
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