Neurofibromatosis(NF)
encompasses a set of distinct genetic disorders (NF1, NF2, Schwannomatosis) which can cause benign and malignant nervous system tumours, however, can also affect multi systems including musculoskeletal, endocrine, skin and organs. Neurofibromatosis may cause complications such as disfigurement, bone deformities, increased risk of cancer, blindness, hearing loss and pain, just to name a few. NF signs and symptoms can be variable, progressive and unpredictable.
Symptoms range from very mild with barely any sign of the disorder to more severe with complications. Although 50% of children born with Neurofibromatosis have inherited the disorder from a parent, NF can also occur spontaneously with no family history.
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The Neurofibromatosis (NF) Society of Ontario (NF Ontario/NFON) is completely driven and organized by volunteers. Our Mission is to provide support, information and assistance to families challenged by NF, work closely with clinical and research professionals who specialize in the treatment of NF, help seed and fund research and provide information about Neurofibromatosis to physicians and the public to familiarize them with the disorder for early recognition and diagnosis. Although not everyone is seriously affected by medical problems associated with NF, monitoring for the known complications which can occur is an important part of routine healthcare for individuals diagnosed with the disorder. Our Vision is universal awareness of the disorder, prevention after discovery of a cause, successful treatment for those affected, cure to end NF.
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$10,000 SEED GRANT for NF1 Research Children's Health Research Institute London Ontario
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Neurofibromatosis Ontario has awarded
$21,135 in Seed Grants to help Launch research in Neurofibromatosis Type 1 & 2 in 2018 & 2019 |
The Mayor of Canada's Capital OTTAWA Proclaims May as
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WITH DEEP GRATITUDE TO OUR NF FAMILY CAMP SPONSORS AND DONORS WITHOUT WHOSE GENEROSITY THIS CAMP WOULD NOT BE POSSIBLE
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DISSEMINATING NEUROFIBROMATOSIS INFORMATION
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FOR ONLY $10 PER YEAR YOU CAN BECOME A MEMBER OF NF ONTARIO.CLICK HERE TO BECOME A MEMBER
* RENEW OR PAY FOR MEMBERSHIP HERE*
* RENEW OR PAY FOR MEMBERSHIP HERE*
NEUROFIBROMATOSIS SOCIETY OF ONTARIO
135 Parsons Lane
Huntsville, Ontario P1H 2N5
PHONE TOLL FREE 1-866-843-6376
Email: [email protected]
REGISTRATION #11905 3775 RR0001
135 Parsons Lane
Huntsville, Ontario P1H 2N5
PHONE TOLL FREE 1-866-843-6376
Email: [email protected]
REGISTRATION #11905 3775 RR0001
Charity Registration #11905 3775 RR0001