Neurofibromatosis(NF)
encompasses a set of distinct genetic disorders (NF1, NF2, Schwannomatosis) which cause benign and malignant nervous system tumours, however, can also affect multisystems including musculoskeletal, endocrine and organs . Neurofibromatosis may cause complications such as disfigurment, bone deformities, increased risk of cancer, blindness, hearing loss and pain, just to name a few.
NF is variable, progressive and unpredictable.
Symptoms range from mild to severe. Although 50% of children born with Neurofibromatosis have inherited the disorder from a parent, NF can also occur spontaneously with no family history.
encompasses a set of distinct genetic disorders (NF1, NF2, Schwannomatosis) which cause benign and malignant nervous system tumours, however, can also affect multisystems including musculoskeletal, endocrine and organs . Neurofibromatosis may cause complications such as disfigurment, bone deformities, increased risk of cancer, blindness, hearing loss and pain, just to name a few.
NF is variable, progressive and unpredictable.
Symptoms range from mild to severe. Although 50% of children born with Neurofibromatosis have inherited the disorder from a parent, NF can also occur spontaneously with no family history.
Who We Are...
The Neurofibromatosis (NF) Society of Ontario (NF Ontario/NFON) is made up of volunteers providing support and assistance to families challenged by NF. We work closely with clinical and research professionals who specialize in the treatment of NF, fund research and provide information about Neurofibromatosis to physicians and the public to familiarize them with the disorder for early recognition and diagnosis. Although not everyone is seriously affected by medical problems associated with NF, monitoring for the known complications which can occur is an important part of routine healthcare for individuals diagnosed with the disorder.
Upcoming Events...
Our NF Warriors are planning to Run, Walk, Jog, Rock and Roll at the Scotiabank Waterfront Marathon in Toronto on Sunday October 16th 2016
to Raise Awareness and Funds for NF Research
To join our team of NF Warriors or sponsor one of our participants please click on our Poster .
Don't forget to use our charity discount codes if you plan to register for the Run or Walk. We are also looking for volunteers to assist at the NF Ontario water table! Our heartfelt thanks to our NF Warrior Volunteers, Donors and STWM Participants for all your help❤️
For further info email: fundraising@nfon.ca
to Raise Awareness and Funds for NF Research
To join our team of NF Warriors or sponsor one of our participants please click on our Poster .
Don't forget to use our charity discount codes if you plan to register for the Run or Walk. We are also looking for volunteers to assist at the NF Ontario water table! Our heartfelt thanks to our NF Warrior Volunteers, Donors and STWM Participants for all your help❤️
For further info email: fundraising@nfon.ca
Print The NF Warrior Pledge Form
| NF Warrior Pledge Form |
NF Ontario had a busy summer reaching out and sharing information with the public about Neurofibromatosis and hosted the second annual NFON picnic for NF families to socialize and support each other
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Print Our Brochure
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Donations
Neurofibromatosis is a Registered Non Profit Charity
Completely Managed by Volunteers Donations Are Always Deeply Appreciated If You Are Able to Help Please Use the CanadaHelps Link to Donate To become a member or volunteer for NF Ontario? Application forms can be found here. Or email volunteer@nfon.ca membership@nfon.ca 
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Thank You to Our Sponsors...
Please Click on The Logo to Visit Our Sponsors' Websites
Charity Registration #11905 3775 RR0001
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