We offer support...

• We network with doctors versed in NF and NF clinics throughout the province and beyond
• We are working with volunteers throughout Ontario to develop support groups
• We recently created a member registry where we connect people wanting support in their vicinity
• We provide information to the medical community, teachers, the media, the public and newly diagnosed patients, their families and friends

We can connect...

• We have a provincial toll free number for inquiries (866) 843-6376 as well as email info@nfon.ca
• We provide opportunities for children and youth with Neurofibromatosis to get together to have fun and meet others facing similar health concerns
• We have annual meetings with guest speakers relevant to various aspects of NF. We offer updated information, fascilitate networking with others challenged by NF ,fund raise and provide awareness materials
• We have had some family picnics and hope to begin doing more
• We publish a newsletter at least once per year
• We have books and pamphlets dealing with NF available upon request and/or links to good online printable resources

We Research...

• We raise money for NF research
• We have an array of fund raising and awareness events including online auctions, silent auctions, raffles, book and bake sales, members involved in marathons, NF info booths at organized functions, etc...
• We share research updates with members regularly