NEUROFIBROMATOSIS ONTARIO
1-866-843-6376
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We offer support...

  • We network with doctors versed in NF and NF clinics throughout the province and beyond
  • We are working with volunteers throughout Ontario to develop support groups
  • We recently created a member registry where we connect people wanting support in their vicinity
  • We provide information to the medical community, teachers, the media, the public and newly diagnosed patients, their families and friends

We can connect...

  • We have a provincial toll free number for inquiries (866) 843-6376 as well as email info@nfon.ca
  • We provide opportunities for children and youth with Neurofibromatosis to get together to have fun and meet others facing similar health concerns
  • We have annual meetings with guest speakers relevant to various aspects of NF. We offer updated information, fascilitate networking with others challenged by NF ,fund raise and provide awareness materials
  • We have had some family picnics and hope to begin doing more
  • We publish a newsletter at least once per year
  • We have books and pamphlets dealing with NF available upon request and/or links to good online printable resources

We Research...

  • We raise money for NF research
  • We have an array of fund raising and awareness events including online auctions, silent auctions, raffles, book and bake sales, members involved in marathons, NF info booths at organized functions, etc...
  • We share research updates with members regularly
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