NF Warriors and Heroes
Living with Neurofibromatosis can be challenging. While there may be similarities in symptoms people with NF have, each individual has their own story. Below are some stories, videos, and media clips of NFON's own NF Warriors and Heroes. We are always looking for new stories about our NF Warriors and Heroes. If you have a story a personal story you would like to share, or will be in any upcoming media interviews. Please let us know and we can help promote the event on our website and through our social media channels.
Nicole Porlier
Nicole an NFON member has written a memoir about growing up with NF called "Bumpy Roads Have Soft Shoulders". Click here to find out more about her book and how you to purchase it.
Nicole an NFON member has written a memoir about growing up with NF called "Bumpy Roads Have Soft Shoulders". Click here to find out more about her book and how you to purchase it.
John Huynh
Abilities recently republished an article original featured in the Canadian Skin Patient Alliance that had a highlight on Neurofibromatosis. Click here to read the article.
Abilities recently republished an article original featured in the Canadian Skin Patient Alliance that had a highlight on Neurofibromatosis. Click here to read the article.
