NF encompasses a set of distinct genetic disorders (NF1, NF2, Schwannomatosis) that cause tumours to grow along nerves and can affect the development of non-nervous tissues such as bones and skin. NF causes tumours to grow anywhere on or in the body and can cause additional complications such as disfigurments, bone deformities and learning disabilities.
The Neurofibromatosis Society of Ontario (NFSO) was founded in 1985. The very first meeting included members that are still very active today. Dedicated to supporting NF people and their families, educating the public and medical profession.
The mission of the NFSO is to support individuals and families affected by NF, to educate its members, professionals, and the general public about NF, and support NF research.
We hold a bi-annual meeting usually the third Sunday in April and also an annual general meeting also usually the third Sunday in October. Members and the general public come from across the province to hear our guest speakers. This is an opportunity to meet and share concerns, feelings and support each other.We also provide some social opportunities where people can meet in a friendly, casual atmosphere; knowing they are accepted and supported.
Through dedication and ambition we have established a good working relationship with doctors, clinics and professionals in their field. We have contact with other NF organizations worldwide.
Our Directors are always available to help direct you and answer any questions you may have.
The mission of the NFSO is to support individuals and families affected by NF, to educate its members, professionals, and the general public about NF, and support NF research.
We hold a bi-annual meeting usually the third Sunday in April and also an annual general meeting also usually the third Sunday in October. Members and the general public come from across the province to hear our guest speakers. This is an opportunity to meet and share concerns, feelings and support each other.We also provide some social opportunities where people can meet in a friendly, casual atmosphere; knowing they are accepted and supported.
Through dedication and ambition we have established a good working relationship with doctors, clinics and professionals in their field. We have contact with other NF organizations worldwide.
Our Directors are always available to help direct you and answer any questions you may have.
