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- We support
research programs that aim at improving treatment options, and finding the
cure
- We provide
information to the medical community, teachers, the media, the public and
newly diagnosed patients, their families and friends
- We have
a provincial toll free number
- We work
with volunteers throughout Ontario to develop and maintain support groups
such as the Mother's Meeting in the greater Toronto area and the Brantford
Support Group
- We have
recently established a member registry where we connect people wanting support
in their vicinity
- We provide
opportunities for children and youth with NF to get together to have fun and
meet others facing similar health concerns
- We have
bi-annual meetings with guest speakers, panels and informal discussions
- We have
an annual family picnic
- We walk
in the Queen's Birthday Parade each year to increase global awareness about
NF
- We have
an array of fundraising events including annual events such as the May Tea
Party, Silent Auction, Hat Day, and an annual raffle
- We publish
a quarterly newsletter
- We have
a variety of booklets and pamphlets dealing with NF available upon request
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