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Support
- We network with doctors versed in NF and NF clinics throughout the province and beyond
- We are working with volunteers throughout Ontario to develop support groups
- We recently created a member registry where we connect people wanting support in their vicinity
- We provide information to the medical community, teachers, the media, the public and newly diagnosed patients, their families and friends
Conncect
- We have a provincial toll free number for enquiries (866) THE-NFSO or (866) 843-6376 as well as our webmail info@nfon.ca
- We provide opportunities for children and youth with NF to get together to have fun and meet others facing similar health concerns
- We have bi-annual meetings with guest speakers relevant to various aspects of NF, updated information, time to network with others with NF, fundraising and awareness materials
- We have had some family picnics and hope to begin doing more
- We publish a newsletter at least 2 -3 times per year
- We have books and pamphlets dealing with NF available upon request and/or links to good online printable resources
Reserch
- We raise money for NF research
- We have an array of fundraising and awareness events including the May Tea Party program, silent auctions, raffles, book and bake sales, members involved in marathons, NF info booths at organized functions, etc...
- We share research updates with members regularly
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